Naveela's Parkinsons

What we hope to achieve: To develop a people’s cure for Parkinson’s disease by synthesizing prophylactic and efficacious lifestyle adjustment information into a new non-invasive direction.

 

What is meant by this language:

people – all information is expected to be made available to Parkinson’s sufferers, their therapy providers, and researchers for free; no approach that is proven to be effective will be patented, though the intellectual property leading up to a successful approach will be protected. The desire here is to preclude money from being an obstacle to access to a cure or improvement.

cure – the remission of all symptoms (tremors, muscle rigidity, etc.), specific therapies no longer necessary, and proof of concept by the successful application of the approach(es) to relieve others suffering from the same.

Parkinson’s disease – a progressive disease of the nervous system marked by tremors, muscular rigidity, and slow, imprecise movement, chiefly affecting middle-aged and elderly people. It is associated with degeneration of the basal ganglia of the brain and a deficiency of the neurotransmitter dopamine.

synthesizing – collecting, aggregating, and organizing into an active repository of “alternative” approaches that may help in relieving the condition.

prophylactic – disease prevention, that is, looking for a cause that can be specifically targeted by alternative therapies, instead of trying to manage symptoms.

efficacious – that which is successful in producing a desired or intended result.

lifestyle adjustment – diet, exercise, sleep pattern, meditation, prayer, positive reinforcement.

non-invasive – approaches are not expected to involve surgery or breaking the skin (as in injections of drugs or supplements).

new direction – most current orthodox approaches (for example, drug therapy and deep brain stimulation) are directed toward management of symptoms and not cure of cause(s). If our intent is cure, perhaps we should be less concerned with directions that are not looking for a cure.

 

Test subject: Naveela Saleem

Subject has suffered from Parkinson’s for 15 years, and condition had deteriorated to the point where she could not perform even the simplest functions (rising, lying down, grooming, eating, etc.) without assistance. While physical and muscular deterioration was severe, she had suffered negligible loss of mental faculties and ability to speak. She has never been on synthetic l-dopamine drug therapy or botulinum toxin to relieve muscle cramping. Currently she is trying an alternative approach, developed by Dr. Hintz, that comes out of functional medicine. In addition to her exercising and walking every day, the therapy consists of her taking the following:

  1. Mucuna pruriens powder – now up to 6.8g, 3x/day
  2. vitamin B6 – 100mg, 3x/day
  3. amino acids: l-lysine (250mg), 5-hydroxytryptophan (150mg), l-tyrosine (1500mg) – 2x/day
  4. amino acid: l-cysteine (1500mg) – 3x/day

Over the course of six months on this therapy, she has shown remarkable improvement in being able to conduct daily self-maintenance activities, which were completely out of her reach before the therapy was initiated. On her own, she is now able to walk at a good pace for one hour and exercise on the rowing machine for 45 minutes; with the help of a caregiver, she is able to do her breathing and range of motion exercises. Her ability to feed herself is also improving, in that for two of three meals out of the day, she is able to mange the silverware on her own; and other activities are also showing improvement. The only noticeable side effect so far has been a weight gain of some 40 pounds, but this could be related to improved nutrient absorption as a result of the therapy.

Early on during the deterioration phase, the fingers in her right hand (though not her thumb) became hyperextended, and much range of motion was lost so that basically she is not able to use her right hand for any useful or meaningful activity. So far Dr. Hintz’s therapy has not made any significant impact on this aspect of the condition. To try to get the hand to open up a little bit, she has tried to squeeze chew toys (for pets) and hold rolled-up face towels in that hand; she has also tried brain games (Lumosity) and puzzles to improve the brain’s ability to manufacture new cells, in the hope of improving her overall condition.

Our goal has been to improve her body’s ability to produce the deficient neurotransmitters on its own and to revive any of the brain cells that may have lapsed as the deterioration process started, so that at some point she can taper herself off the medicine, while retaining all of the lifestyle adjustments. To be able to accomplish this, the hope is to be able to use the ShuraForAll forum to invite participation from sufferers and their therapy providers, as well as professionals from all across the world, regardless of specialty and orthodoxy (allopathy, homeopathy, ayurvedic, etc), the common feature binding them all being association with Parkinson’s and related conditions. As a first step, we will seek the participation of professionals at the Functional Medicine Institute, Life Extension, and Dr. Paneri’s practice in India.

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